Hand to Hold's Official Blog: Written by Parents for Parents

10 Things Every Preemie Parent Should Know

When I think of motherhood, I think of it being a beautiful, yet scary adventure. For many women it’s a club that everyone wants to join, by any means necessary. Becoming a preemie mom was a club I got initiated in without signing up. During my first pregnancy, I tried to prepare as best as possible by following all of the “first mom rules.” I signed up for the hospital tour, started the baby registry early, read articles and more. I was in full preparation for my unborn baby when I was hit with the biggest curve ball. I went into preterm labor at 21 weeks and ultimately delivered at 22 weeks 6 days. I hadn’t prepared to become a preemie mom. In the days leading up to giving birth to my son, the NICU team came and spoke to my family and me. They discussed the risk of having a micro-preemie and what that could potentially mean for us.

My OB encouraged us to do comfort care and “try again later.” To say my world was shaken would be a complete understatement. When I told the Doctors to save my son no matter what the risk or challenges ahead, I really didn’t know what I was getting us into. While the risks were a bit scary, I knew in my heart that my baby boy deserved a fighting chance. I quickly discovered that becoming a NICU mom would take courage that up until this point had never fully been tapped into.

preemie in NICU, preemie parent, 10 thingsPrior to Jaxson’s birth I had no real knowledge of the Neonatal Intensive Care Unit. I had no idea of the feelings, smells and sounds that would dominate our life over the course of 119 days. [Continue reading]

Children’s Books About Prematurity

soon jessica watson

How do you explain delicate topics of prematurity, loss and the NICU to a child? The following books have been reviewed and recommended for parents looking to teach children about their own journey through prematurity or looking to support the … [Continue reading]

Peer Mentors: A Lifesaver In The NICU

The first time I saw my daughter.  It was a scary isolating feeling.

It’s so easy to feel alone in the NICU. Your dream of a perfect healthy little baby may have been quickly taken away in a rushed birth. Sitting by your baby’s bedside, you can seem like no one understands how you feel. You might feel like no one … [Continue reading]

A NICU Nurse Reunion

NICU nurse, former preemies, preemie twins, hand to hold

This is Jeannie. I met Jeannie in the NICU when she was assigned to my identical twin girls one Saturday afternoon. Still early enough in our NICU stay, we had bounced around from nurse to nurse, a new face each day, a new name to try not to … [Continue reading]

4 Tips for Raising a Child with Hydrocephalus

4 tips

Whether your baby is diagnosed in utero or after birth, the diagnosis of hydrocephalus comes as a shock to any parent. A sad fact is that Intraventricular Hemorrhage (IVH) is the leading cause of hydrocephalus in preterm infants and varying levels … [Continue reading]